Monday, January 4, 2010

News

Well, that was an interesting Holiday season!

I will spare you the blahdy blahdy blah of the minutia of our lives this past month and a half. Suffice it to say that it was good and we were able to celebrate and have fun and enjoy each other. All good things and for those we are so grateful!

Next weekend we will be getting the Baby Girl baptized! FINALLY...I mean she is only 15 months old! (This is not in line with my Dutch heritage of baptizing the baby once he/she is about 7 - 8 weeks old) I am looking forward to it...it means so much to me to baptize her and give her this outward sign of what we pray will be a life of faith for her.

We had very difficult news over the holiday regarding Claire. We were finally able to see the developmental specialist that we had been referred to back about 8 weeks ago. He is hard to get in to see and then he was sick with the flu on our initial original date for the exam so it got pushed to the 22nd. Baby Girl has yet to crawl and at 15 months is still fairly limited in her gross motor skills. We have had her in therapy both physical and occupational since she was 7 months and while she is progressing, it is not where she should be. Thus the developmental doctor.

He was amazing and took an entire hour to examine her and then told us that he believes she may have cerebral palsy.

NOT what any parent in any situation wants to hear.

CP is a broad term that ranges from being quadriplegic and blind/deaf to not even knowing a person has it. Its not degenerative (it wont get worse over time) and usually comes from a brain injury incurred in utero or during birth.

This was very very hard. I had an experience at that moment that others had talked about but that i had never had before...it has to be similar to what learning disabled students face in the classroom because the doctor was talking but I was not understanding what he was saying or able to follow the conversation. My mind was flooded with the diagnosis. I kept having to ask him to repeat himself and then apologized for being so "not with it" and he gently put his hand on my shoulder and said, "Youre doing great...that is totally normal."

The good doctor got on the phone and set up for us an EEG and an MRI to be completed by the end of the year. (SO HELPFUL) and also called his friend a pediatric neurologist and asked him to see us within the two weeks. Today we go and hear what he has to say and to get the information from the two tests.

People have been praying. Loads of people. Mostly I feel peace. I little anxious, but ironically, E and I made a decision to not let it ruin Christmas and to enjoy the peace that God has given to us through other's prayers for us. It worked and we have been able to rest in God...I dont understand it but I am welcoming it.

And then...

The Baby Girl started crawling!! Like... on the 28th!! Like randomly....as in, she couldn't, and then she could.

I can only attribute it to God intervening.

She is far from where she should be but the fact that she is mobile has made her immensely happier and just motivated her to move forward. I am so excited for her and tremendously encouraged.

Today we will find out what exactly this is going to look like. Pray for us if you think of it. I will keep you posted!

9 comments:

Debby Sutton said...

P- praying for a crazy won't that baby ever stop crawling girl. May you go bonkers over how much she moves!!

Vicki said...

I was thinking of you this afternoon-- and am hoping you can find some "be good to patti" time soon. xxxooo

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