Yes, its been five months since I blogged last. Life got crazy...not in a bad way but just in A way!
In a nutshell our summer:
1. Great news on Claire! They do not believe that she has white matter degenerative disease. PRAISE GOD! This was a huge huge answer to prayer! We also ruled out some genetic and metabolic issues at the beginning of the summer. I am SO HAPPY to be done with these two avenues for now. The beginning of the summer was spent getting blood work, (several times), MRI, visiting the geneticist and also the pediatric neurologist. As of now we do not have a diagnosis. HOWEVER she is progressing nicely. We currently do six therapy sessions a week. Four PT and two Speech. She is walking holding onto a push toy and can walk with holding someone's hand but cannot stand on her own yet or walk on her own yet. It seems very likely that she will be doing this SOON and so we continue to pray and explore other avenues for answers. We will be seeing the pediatric opthamologist in September to discuss a leison they found behind her right orbital. This may be a significant finding as some of her issues appear to be vestibular in nature (dealing with balance and sight has a great deal to do with that!)
2. We got to spend a week on St. George Island with Eric's family. Gorgeous huge house, fun people, great food and drinks and it was a time of fabulous renewal. I felt myself sigh and relax. SO GREAT!
3. I dont have cancer! Yes, this is a huge praise. They found a huge (10 lb) it turns out tumor in my abdomen at the end of the school year. I simply refused to deal with it until after we got back from our trip. My brain couldnt take any more information until we had found out about Claire. I ended up having a full abdominal hysterectomy. The surgery and recover were horrible. (60 vertical staples and 10 sutures...) Seriously, the worst physical pain that I have ever experienced. I literally prayed for Jesus to return. HOWEVER, I do not have cancer, which is a huge praise. My lovely mom stayed with us for a week and my mother in law came after she arrived. Our church family lovingly showered us with meals for a month and slowly slowly slowly slowly....I have regained strength. Today I woke up and thought, "Wow I actually feel like myself" Its a nice feeling.
And that brings us to now....the Girl began 7th grade. UNBELIEVABLE!!! I returned to working three days a week and the school year is underway.
Below are some pictures to catch you up. Enjoy!
Me and the girlies! I love how they make each other laugh!
The Girl the night of her 6th grade Moving Up Party
Bloggers being pokey so more later! :)